Thanks for joining us for the
#ShortBowelSyndrome Twitter Chat on Aug 30, 2022
which was led by:
We will be discussing what patients with #shortbowelsyndrome and their caregivers experience. The Twitter Chat is aimed to increase awareness about SBS among mental health professionals and other members of the care team about ways to address complex psychosocial needs.
What is a Twitter Chat?
A Twitter Chat is a live public discussion on a specific topic that is held at a given date/time. The entire chat takes place on Twitter. How do you participate in a Twitter chat? 1. Create a Twitter account 2. On the date/time of the Twitter Chat, open Twitter and search for the hashtag #shortbowelsyndrome You can also do this by clicking on this link: twitter.com/hashtag/shortbowelsyndrome 3. Follow each numbered discussion question (Q1, Q2, etc.), see what people are saying, RT (retweet), "like," and respond with your own tweets 4. Begin each of your tweets with "A1, A2, A3, etc." to indicate that you are answering Question 1, Question 2, etc. For example, if Q1 (Question 1) was asking about how to find SBS support groups, then participants could respond with a tweet that begins with A1 and include an example of an SBS support group. 5. When sending a tweet, be sure to include the hashtag #shortbowelsyndrome Here's a brief snippet from a Twitter Chat
Q1 = Question 1 A1 = Answer 1 |
Thanks for joining us for the #ShortBowelSyndrome Twitter Chat on July 15, 2022
which was led by:
Twitter Chat Analytics: July 15, 2022
Archived #ShortBowelSyndrome Twitter Chat:
July 15, 2022
Question 1: We’re going to explore a “day in the life” of patients with SBS (children or adults) or their caregivers. What is the morning like when they get up? What are they doing to prepare for their day? What are some of the challenges?
twitter.com/i/events/1549220537263706113
Question 2: Continuing with a “day in the life” of patients with SBS and caregivers… What is the afternoon like? Lunch or snacks? Social activities? What may be causing stress or anxiety?
twitter.com/i/events/1549223472450134018
Question 3: Continuing with a “day in the life” of patients with SBS and caregivers… What is the evening like? Preparing for bedtime?
twitter.com/i/events/1549230867150675968
Question 4: What are some of the psychosocial challenges that patients with SBS and caregivers often need to navigate?
twitter.com/i/events/1549232779124162560
Question 5: Any tips or suggestions around coping and self-care strategies for patients with SBS and their caregivers?
twitter.com/i/events/1549234533891035136
Question 6: How can medical, nursing, and mental health professionals help patients with SBS and their caregivers navigate some of these psychosocial challenges?
twitter.com/i/events/1549235913049481217
Question 7: What other topics would you like to see us discuss? Or, any final thoughts as we get ready to close the discussion?
twitter.com/i/events/1549237173211353088
twitter.com/i/events/1549220537263706113
Question 2: Continuing with a “day in the life” of patients with SBS and caregivers… What is the afternoon like? Lunch or snacks? Social activities? What may be causing stress or anxiety?
twitter.com/i/events/1549223472450134018
Question 3: Continuing with a “day in the life” of patients with SBS and caregivers… What is the evening like? Preparing for bedtime?
twitter.com/i/events/1549230867150675968
Question 4: What are some of the psychosocial challenges that patients with SBS and caregivers often need to navigate?
twitter.com/i/events/1549232779124162560
Question 5: Any tips or suggestions around coping and self-care strategies for patients with SBS and their caregivers?
twitter.com/i/events/1549234533891035136
Question 6: How can medical, nursing, and mental health professionals help patients with SBS and their caregivers navigate some of these psychosocial challenges?
twitter.com/i/events/1549235913049481217
Question 7: What other topics would you like to see us discuss? Or, any final thoughts as we get ready to close the discussion?
twitter.com/i/events/1549237173211353088